closer to going home.
I'll fill you in more as news becomes available.
I have made a little progress the last couple days. They removed one
of my chest tubes Sunday, the 2nd one is still draining so it remains
in. I am also breathing on my own, without the help of additional
oxygen or breathing treatments. I still work at coughing up the gook
but I do it on my own. Plus they removed my catheter! I have never
been anywhere that is so interested in my pee and poop as a hospital!
Funny in one respect but actually very important. Most importantly I
have gained a lot of strength back; I took a long walk with the
therapist today and also have been getting up and moving on my own
quite a bit. I still have a lot of attachments with the tubes and IV's
and all so it makes it hard to move around without helpers. Jessica
has become an expert at helping me!
I have been receiving IV antibiotics almost constantly since I got
here, they have identified one of the infections in my lung but there
is another that they are still working on. I guess it is a lot
different on TV where they can identify this stuff at the snap of your
Monday I am supposed to have a swallowing study where they can somehow
video record how I swallow. (this got delayed from a couple days ago)
From there they can see if there is some defect in my body or in the
way I swallow that causes my problem. I'm sure hoping they find
something to help. I'm also hoping they can remove the other chest
tube as the nurses tell me they see very little drainage happening now.
I hope that tells you enough because it is about all I know other than
grisly details about each of the general things I mentioned. Please
know that I am deeply moved and thankful that you care enough to keep
up with me. Love you all.
So I am pretty much in the same place I was Thursday but a little
farther along in my healing. I have 2 chest tubes still in and
draining and I am still working on coughing the gook out of my lungs.
I got 1 unit of blood yesterday and am due for at least 1 more today.
Evidently there are some blood levels that keep dropping that they
don't like and fresh blood is the only way to replace those chemicals.
I did get out of bed about 4 times yesterday for various things which
is a lot of work but also good for me, I need that action moving
around and using my muscles. Strange how just maintaining your
balance can be so much work!
I have no idea when I will be sent home to finish healing. I know I am
nowhere near ready yet. I would hope the tubes can come out in the
first part of next week and then I can work on strength building and
breathing better. We'll see what happens.
Thanks again for all of your support. I thank God every day for so
many wonderful friends and family.
Be Well - Be Blessed!
I spent all of the day Thursday between my bed and my chair. I was
experiencing quite a bit of pain but the nursing staff did a great job
of helping me keep it under control. I have my little friend, the pain
pump button, and when things get too rough I can hit the button for a
shot of relief. I am also still on the patch that I have been wearing
and taking Tylenol as well. I had a few visitors during the morning
which was very nice but we kept getting interrupted by nurses,
doctors, and techs trying to do their jobs. I guess morning is not the
best time to visit.
I have also been receiving regular breathing treatments to help clear
my lungs and airways of any gook (medical term there). The treatments
are through an inhaler (potheads - think bong) which allows the
medication to reach all the small airways and air sacs in my lungs.
They usually cause me to start coughing up the gook which really makes
me breathe better. I still have the lung drainage tubes in and a lot
of the gook goes out that way as well.
Friday I am scheduled for a swallowing study where they are supposed
to be able to diagnose any problems with the way I swallow. Since they
believe the cause of this whole episode is that I aspirated some food
or liquid this study might help a lot. Anyone who has eaten with me
lately knows that I am prone to coughing and choking while eating.
It very easy for food to go down the wrong pipe.
Well they have been coming in to start prodding and poking so I'll
sign off. Thanks for staying in touch and I'll be back to you soon.
Be Well - Be Blessed
Right now I am very sore so I am cutting this short to rest.
God Bless You All!
Of course this mass is in a spot that is not able to be accessed via
needle biopsy so they have to knock me out and cut me open to get a
sample from it. That is scheduled to happen Wednesday morning. In the
meantime today I am having pulmonary function tests and a couple other
teststo keep me busy today.
Today (Tuesday) has been a series of waits and rushes. Jess and I
were hanging out in the room doing nothing for a long time so we
ordered a late lunch. That's when a line seemed to form at the
door. Between doctors, therapists, anesthesiologists, nurses, and
physician assistants we saw about 10 people over the course of about
45 minutes. And then they took me to get another X-Ray. Needless to
say lunch had to wait.
So I'll update you as soon as I am feeling well enough. I appreciate
you keeping up with my plight!